For some women, being diagnosed with PCOS will be a straightforward process. They will make an appointment with a gynecologist, undergo a thorough examination, and receive a proper diagnosis. Unfortunately, for others like myself, the journey can be much more challenging.

My Struggle to Get a PCOS Diagnosis

I knew something was wrong with me, and I suspected it was PCOS. I had done my homework, researched my gynecologist’s credentials, and compiled a list of my symptoms that matched PCOS. My family history added to my concerns, as my sister had already been diagnosed with the condition. Armed with the knowledge, I walked into the doctor’s office, hopeful for answers.

As I sat on the exam table, the gynecologist asked “What brings you here today”. I immediately started with my concerns about having PCOS, listing my symptoms one by one. I talked about my history of irregular and absent periods, my ongoing struggle with cystic acne, and the excruciating pelvic pain that had sent me to the ER multiple times. I explained the recent weight gain and the throbbing sensations in my ovaries.

However, my concerns were met with a disappointing response. The gynecologist lightly pressed my pelvic area with her fingers and concluded, “Well, I am unable to reproduce the pain. There’s no way you can have PCOS”. It was a shockingly dismissive assessment, especially given the spontaneous nature of my symptoms.

Standing Up for My Health

I wasn’t ready to accept this judgement without a fight. I asked her directly, “Are you sure that I do not have PCOS?” Her response was to leave the room abruptly, without offering further assistance or explanation.

I was stunned. Determined to find answers, I sought a second opinion. This decision proved crucial. Through a comprehensive evaluation, including laboratory tests and a transvaginal ultrasound, I received a definitive diagnosis of PCOS. The ultrasound revealed cystic ovaries, shedding light on the excruciating pelvic pain I had experienced.

The Importance of Advocacy

I often reflect on what could have happened if I had not challenged the initial diagnosis, or lack thereof, and sought that second opinion. What if I had not been properly diagnosed with PCOS?

These questions fuel my commitment to raising awareness of PCOS, especially in minority communities. My journey underscores the significance of advocating for our own health and seeking second opinions when necessary. PCOS is a complex condition, and its symptoms vary widely. It’s vital that we empower ourselves with knowledge and trust our instincts.